{"id":901,"date":"2016-01-15T06:59:22","date_gmt":"2016-01-15T06:59:22","guid":{"rendered":"http:\/\/cbb.uw.edu.pl\/en\/?page_id=901"},"modified":"2025-12-11T11:00:48","modified_gmt":"2025-12-11T11:00:48","slug":"research-ethics","status":"publish","type":"page","link":"https:\/\/cbb.uw.edu.pl\/en\/publications\/research-ethics\/","title":{"rendered":"Research ethics"},"content":{"rendered":"<h2>Innovative therapy<\/h2>\n<ul>\n<li>Caplan, AL., Teagarden, JR., Kearns, L., Bateman-House, AS., Mitchell, E., Arawi, T., Upshur, R., Singh, I., <strong>R\u00f3\u017cy\u0144ska<\/strong><strong>, J<\/strong>., Cwik, V., Gardner SL., <a href=\"https:\/\/jme.bmj.com\/content\/early\/2018\/07\/07\/medethics-2016-103917\">Fair, just and compassionate: A pilot for making allocation decisions for patients requesting experimental drugs outside of clinical trials<\/a><em>.<\/em>\u00a0<em>Journal of Medical Ethics<\/em>, doi: 10.1136\/medethics-2016-103917<\/li>\n<li>Borysowski, J.,\u00a0Saxena, A.,\u00a0Bateman-House, A.,\u00a0Papaluca, M.,\u00a0<strong>R\u00f3\u017cy\u0144ska<\/strong> J.,\u00a0Wnukiewicz-Koz\u0142owska, A., ,\u00a0G\u00f3rski A. (2018).\u00a0<a href=\"https:\/\/jech.bmj.com\/content\/72\/7\/557.long\">Expanded access: growing importance to public health<\/a>.\u00a0<em>Journal of Epidemiology and Community Health<\/em>, doi: 10.1136\/jech-2017-210409<\/li>\n<li><strong>R\u00f3\u017cy\u0144ska<\/strong>, J. (2016). <a href=\"https:\/\/www.academia.edu\/30705036\/Eksperyment_leczniczy_-_dwa_w_jednym_Therapeutic_experiment_-_two_in_one_-_draft_version\">Eksperyment leczniczy &#8211; dwa w jednym?<\/a>. <em>Prawo i Medycyna<\/em>, 68\/18(2), 5-30.<\/li>\n<\/ul>\n<h2><span style=\"color: #000000;\">Risks and benefits <\/span><\/h2>\n<ul>\n<li><strong>R\u00f3\u017cy\u0144ska<\/strong>, J. (2025).\u00a0<a href=\"https:\/\/diametros.uj.edu.pl\/diametros\/article\/view\/2028\">How Best to Interpret the Minimal Risk Threshold in the EU Regulation on Clinical Trials?\u201d<\/a>.\u00a0<i>Diametros<\/i>, June, 1-27.\u00a0<a href=\"https:\/\/doi.org\/10.33392\/diam.2028\">https:\/\/doi.org\/10.33392\/diam.2028<\/a>.<\/li>\n<li><strong>R\u00f3\u017cy\u0144ska<\/strong> J. (2025)\u00a0<a href=\"https:\/\/www.tandfonline.com\/doi\/full\/10.1080\/15265161.2024.2441724?scroll=top&amp;needAccess=true\">Collective Risks and the Social Disvalue of Research<\/a>.\u00a0<i>The American Journal of Bioethics<\/i>,\u00a0<i>25<\/i>(2), 90\u20133. https:\/\/doi.org\/10.1080\/15265161.2024.2441724<\/li>\n<li><strong>R\u00f3\u017cy\u0144ska<\/strong>, J. (2023).\u00a0<a href=\"https:\/\/link.springer.com\/chapter\/10.1007\/978-3-031-12692-5_14#citeas\">How risky can biomedical research be?<\/a>. In: Zima, T., Weisstub, D.N. (eds) Medical Research Ethics: Challenges in the 21st Century. Springer, Cham.<\/li>\n<li><strong>R\u00f3\u017cy\u0144ska<\/strong>, J. (2022).\u00a0<a href=\"https:\/\/link.springer.com\/article\/10.1007\/s11673-022-10179-7\">The principle of the primacy of the human subject and minimal risk in non-beneficial paediatric research<\/a>.\u00a0<i>Bioethical Inquiry<\/i>\u00a0<span data-test=\"journal-volume\">\u00a019:\u00a0<\/span>273\u2013286.<\/li>\n<li><strong>\u0141uk\u00f3w<\/strong>, P. (2022).\u00a0<a href=\"https:\/\/onlinelibrary.wiley.com\/doi\/full\/10.1111\/bioe.13049\">Solidarity and the ethics of exposing others to risk in medical research<\/a>.\u00a0<i>Bioethics<\/i>\u00a036(8): 821-828.<\/li>\n<li><strong>R\u00f3\u017cy\u0144ska<\/strong>, J. (2021).\u00a0<a href=\"https:\/\/link.springer.com\/article\/10.1007\/s11019-021-10043-2\">Taking the principle of the primacy of the human being seriously<\/a>.\u00a0<span lang=\"EN-US\"><i>Medicine, Health Care and Philosophy\u00a0<\/i>24, 547\u2013562.<\/span><\/li>\n<li><strong>R\u00f3\u017cy\u0144ska<\/strong>, J. (2019),<a href=\"https:\/\/www.tandfonline.com\/doi\/abs\/10.1080\/15265161.2019.1630510?journalCode=uajb20\">\u00a0Passivity, research risks, and worker-type protections for research subjects<\/a>, <em>The American Journal of Bioethics<\/em> 19\/9: 46-48.<\/li>\n<li><strong>R\u00f3\u017cy\u0144ska<\/strong>, J. (2018). <a href=\"https:\/\/jme.bmj.com\/content\/early\/2018\/05\/24\/medethics-2017-104267\">What makes clinical labour different? The case of human guinea\u00a0pigging<\/a>.<em> Journal of Medical Ethics,<\/em> <span class=\"highwire-cite-metadata-volume highwire-cite-metadata\">44:<\/span><span class=\"highwire-cite-metadata-pages highwire-cite-metadata\">638-642.<\/span><\/li>\n<li><strong>R\u00f3\u017cy\u0144ska<\/strong>, J. (2017).\u00a0<a href=\"https:\/\/www.academia.edu\/32791297\/Ryzyko_i_potencjalne_korzy%C5%9Bci_badania_biomedycznego_bez_potencja%C5%82u_terapeutycznego_z_udzia%C5%82em_os%C3%B3b_ma%C5%82oletnich_Risks_and_potential_benefits_in_non-beneficial_research_with_minors_-_draft_version\">Ryzyko i potencjalne korzy\u015bci badania biomedycznego\u00a0bez potencja\u0142u terapeutycznego z udzia\u0142em os\u00f3b ma\u0142oletnich<\/a>.\u00a0<em>Prawo i medycyna<\/em>\u00a069\/19(2), 21-37.<\/li>\n<li><strong>R\u00f3\u017cy\u0144ska<\/strong>, J. (2016).\u00a0<a href=\"http:\/\/www.academia.edu\/26771751\/Etyka_i_ryzyko_w_nieterapeutycznych_badaniach_biomedycznych_Ethics_of_risk_in_non-benefitial_biomedical_research_-_draft_version\">Etyka i ryzyko w \u201enieterapeutycznych\u201d badaniach biomedycznych<\/a>.\u00a0<em>Przegl\u0105d Filozoficzny. Nowa seria<\/em>, 2(98), 213-226.<\/li>\n<li><strong>R\u00f3\u017cy\u0144ska<\/strong>, J. (2016).\u00a0<a href=\"http:\/\/www.academia.edu\/26771277\/Regulacja_ryzyka_i_potencjalnych_korzy%C5%9Bci_badania_biomedycznego_z_udzia%C5%82em_cz%C5%82owieka_w_standardach_mi%C4%99dzynarodowych_Regulation_of_risks_and_potential_benefits_of_biomedical_research_involving_humans_in_international_standards_-_draft_version\">Regulacja ryzyka i potencjalnych korzy\u015bci badania biomedycznego z udzia\u0142em cz\u0142owieka w standardach mi\u0119dzynarodowych<\/a>. <em>Prawo i Medycyna<\/em>, 68\/18(2), 58-78.<\/li>\n<li><strong>R\u00f3\u017cy\u0144ska<\/strong>, J. (2015). <a href=\"http:\/\/onlinelibrary.wiley.com\/doi\/10.1111\/bioe.12146\/abstract\">On the Alleged Right to Participate in High-Risk Research<\/a>. <i>Bioethics,<\/i>\u00a0 29(7), 451\u2013461. doi:10.1111\/bioe.12146<\/li>\n<li><strong>R\u00f3\u017cy\u0144ska<\/strong>, J. (2012). <a href=\"https:\/\/www.profinfo.pl\/ochrona-zdrowia\/prawo-medyczne-i-ochrona-zdrowia\/p,badania-naukowe-z-udzialem-ludzi-w-biomedycynie-standardy-miedzynarodowe,51314.html\">Ocena ryzyka i korzy\u015bci badania biomedycznego<\/a>. In:\u00a0J. R\u00f3\u017cy\u0144ska, M.Walig\u00f3ra (Eds), <em>Badania naukowe z udzia\u0142em ludzi w biomedycynie. Standardy mi\u0119dzynarodowe. <\/em>Warszawa: Lex a Wolters Kluwer business, pp. 65-85.<\/li>\n<li><strong>R\u00f3\u017cy\u0144ska<\/strong>, J. (2011). <a href=\"http:\/\/www.prawoimedycyna.pl\/index.php?str=artykul&amp;id=1271\">Standard minimalnego ryzyka<\/a>. <i>Prawo i Medycyna<\/i>, 13(43), 5\u201322.<\/li>\n<\/ul>\n<h2><span style=\"color: #000000;\"><strong>Clinical equipoise<\/strong><\/span><\/h2>\n<ul>\n<li><strong>R\u00f3\u017cy\u0144ska<\/strong>, J. (2013). <a href=\"http:\/\/www.impulsoficyna.com.pl\/nowosci\/etyka-w-medycynie-wczoraj-i-dzis,1531.html\">Sp\u00f3r o fundamenty etyki randomizowanych bada\u0144 klinicznych<\/a>, In:\u00a0K. Basi\u0144ska, &amp; J. Halasz (Eds), <em>Etyka w medycynie \u2013 wczoraj i dzi\u015b. Wybrane zagadnienia<\/em>. Krak\u00f3w: Oficyna Wydawnicza \u2018Impuls\u2019, pp.\u00a0171-183.<\/li>\n<li><strong>R\u00f3\u017cy\u0144ska<\/strong>, J., &amp; Walig\u00f3ra, M. (2011). Kilka uwag o zasadzie r\u00f3wnowagi klinicznej. <i>Medycyna po Dyplomie<\/i>, 20(8), 89\u201390.<\/li>\n<\/ul>\n<h2><span style=\"color: #000000;\"><strong>Consent for research<\/strong><\/span><\/h2>\n<ul>\n<li><strong>R\u00f3\u017cy\u0144ska<\/strong>, J. (2016). <a href=\"https:\/\/www.academia.edu\/30057986\/Etyczne_i_prawne_aspekty_prowadzenia_bada%C5%84_biomedycznych_z_udzia%C5%82em_os%C3%B3b_w_stanach_nag%C5%82ego_zagro%C5%BCenia_zdrowotnego_emergency_research_Ethical_and_legal_aspects_of_emergency_research_\">Etyczne i prawne aspekty prowadzenia bada\u0144 biomedycznych z udzia\u0142em os\u00f3b w stanach nag\u0142ego zagro\u017cenia zdrowotnego (emergency research)<\/a>, In: A. Paprocka-Lipi\u0144ska &amp; R. Budzi\u0144ski (Eds). <em>Etyka w medycynie \u2013 mi\u0119dzy teori\u0105 a praktyk\u0105<\/em>. Gda\u0144sk, pp. 148-175.<\/li>\n<li>Walig\u00f3ra, M., <strong>R\u00f3\u017cy\u0144ska<\/strong>, J., &amp; Piasecki, J. (2016). <a href=\"http:\/\/download.springer.com\/static\/pdf\/121\/art%253A10.1007%252Fs11019-015-9643-8.pdf?originUrl=http%3A%2F%2Flink.springer.com%2Farticle%2F10.1007%2Fs11019-015-9643-8&amp;token2=exp=1454185579~acl=%2Fstatic%2Fpdf%2F121%2Fart%25253A10.1007%25252Fs11019-015-9643-8.pdf%3ForiginUrl%3Dhttp%253A%252F%252Flink.springer.com%252Farticle%252F10.1007%252Fs11019-015-9643-8*~hmac=305e454cb431d8aabe1cd0dc920dc03428cc8608a6db2a7e51dd896334d73907\">Child\u2019s Objection to Non-Beneficial Research: Capacity and Distress Based Models<\/a>. <em>Medicine Health Care and Philosophy, <\/em>19(1), 65-70. doi:10.1007\/s11019-015-9643-8.<\/li>\n<li><strong>\u0141uk\u00f3w<\/strong>, P. (2012). <a href=\"https:\/\/www.profinfo.pl\/ochrona-zdrowia\/prawo-medyczne-i-ochrona-zdrowia\/p,badania-naukowe-z-udzialem-ludzi-w-biomedycynie-standardy-miedzynarodowe,51314.html\">Zgoda na udzia\u0142 w badaniu naukowym w biomedycynie<\/a>. In:\u00a0J. R\u00f3\u017cy\u0144ska, M.Walig\u00f3ra (Eds), <em>Badania naukowe z udzia\u0142em ludzi w biomedycynie. Standardy mi\u0119dzynarodowe. <\/em>Warszawa: Lex a Wolters Kluwer business, pp. 86\u2013105.<\/li>\n<li>Czarkowski, M., &amp; <strong>R\u00f3\u017cy\u0144ska<\/strong>, J. (2008). <a href=\"http:\/\/www.nil.org.pl\/__data\/assets\/pdf_file\/0019\/82720\/NIL_Etyka_Swiadomy-Udzial-w-Eksp-Med_Suma.pdf\">\u015awiadoma zgoda na udzia\u0142 w eksperymencie medycznym. Poradnik dla badacza<\/a>. Warszawa: O\u015brodek Bioetyki NRL &amp; Naczelna Izba Lekarska, pp. 144.<\/li>\n<li><strong>R\u00f3\u017cy\u0144ska<\/strong>, J. &amp; Czarkowski, M. (2007). <a href=\"http:\/\/link.springer.com\/article\/10.1007%2Fs11948-007-9023-8\">Emergency Research without Consent under Polish Law<\/a>. <em>Science and Engineering Ethics<\/em> 13, 337\u2013350.<\/li>\n<\/ul>\n<h2>Research payment<\/h2>\n<ul>\n<li><strong>R\u00f3\u017cy\u0144ska<\/strong>, J. <strong>Kaczmarek<\/strong>, E. (2025).\u00a0<a href=\"https:\/\/przegladprawamedycznego.pl\/pdf-211366-132942?filename=Wynagradzanie%20uczestnikow.pdf\">Paying participants in medical research. An ethico-legal analysis of Article 23b(1) of the Polish Act on the Professions of Physician and Dentist<\/a>.\u00a0<em>Przegl\u0105d Praw Medycznego<\/em>, 7(3), 5-40.\u00a0https:\/\/<span class=\"magBibliographyDOI\">doi.org\/10.70537\/ppm\/211366<\/span>.<\/li>\n<li><strong>R\u00f3\u017cy\u0144ska<\/strong>, J.\u00a0 (2025).\u00a0<a href=\"https:\/\/www.tandfonline.com\/doi\/full\/10.1080\/15265161.2025.2488286\">Research Payments, Other Collateral Benefits, and the Ethics of Imposing Research Risk<\/a>.\u00a0<i>The American Journal of Bioethics<\/i>,\u00a0<i>25<\/i>(5), 92\u201394. https:\/\/doi.org\/10.1080\/15265161.2025.2488286<\/li>\n<li><strong>R\u00f3\u017cy\u0144ska<\/strong>, J. (2023). <a href=\"https:\/\/link.springer.com\/article\/10.1007\/s11019-022-10125-9\">A few remarks on limits of research risks and research payments<\/a>.\u00a0<i>Medicine, Health Care and Philosophy<\/i>\u00a0<em>26<\/em>, 155\u2013156.<\/li>\n<li><strong>R\u00f3\u017cy\u0144ska<\/strong>, J. (2022).<a href=\"https:\/\/link.springer.com\/article\/10.1007\/s11019-022-10092-1\">The ethical anatomy of payment for research participants<\/a>.\u00a0<i>Medicine Health Care and Philosophy <\/i>25, 449\u2013464.<\/li>\n<li><strong>R\u00f3\u017cy\u0144ska<\/strong>, J. (2021). <a href=\"https:\/\/www.tandfonline.com\/doi\/abs\/10.1080\/15265161.2020.1870770\">Research Participants Should Be Rewarded Rather than \u201cCompensated for Time and Burdens<\/a>\u201d,\u00a0<em>The American Journal of Bioethics <\/em>21 (3): 52-54.<\/li>\n<li><strong>R\u00f3\u017cy\u0144ska<\/strong>, J. (2019),<a href=\"https:\/\/www.tandfonline.com\/doi\/abs\/10.1080\/15265161.2019.1630510?journalCode=uajb20\">\u00a0Passivity, research risks, and worker-type protections for research subjects<\/a>,\u00a0<em>The American Journal of Bioethics<\/em> 19(9): 46-48.<\/li>\n<\/ul>\n<h2>Vulnerability in research<\/h2>\n<ul>\n<li><strong>\u0141uk\u00f3w,<\/strong> P. (2023). <a href=\"https:\/\/link.springer.com\/chapter\/10.1007\/978-3-031-12692-5_4\">Persons and Groups: Protection of Research Participants with Vulnerabilities as a Process<\/a>. In: Zima, T., Weisstub, D.N. (eds) Medical Research Ethics: Challenges in the 21st Century. Springer, Cham.<\/li>\n<\/ul>\n<h2><span style=\"color: #000000;\"><strong>Personal data protection <\/strong><\/span><\/h2>\n<ul>\n<li><span lang=\"PL\"><strong>\u0141uk\u00f3w<\/strong>, P., &amp; Bong-Po\u0142e\u0107, P. (2005). <a href=\"http:\/\/www.ashgate.com\/isbn\/9780754643500\">Research Ethics Committees and Personal Data Protection in Poland<\/a>. In: D. Beyleveld, D. Townend, &amp; J. Wright (Eds),<em> Research Ethics Committees, Data Protection and Medical Research in European Countries<\/em>. Ashgate Publishing Ltd., pp. 177\u2013187.<\/span><\/li>\n<li><span lang=\"PL\"><strong>\u0141uk\u00f3w<\/strong>, P. (2004). <a href=\"http:\/\/www.amazon.co.uk\/Implementation-Protection-Directive-Relation-Research\/dp\/0754623696\">Personal Data Protection and Medical Research in Poland<\/a>. In: D. Beyleveld, D. Townend, S. Rouille-Mirza, &amp; J. Wright (Eds), Implementation <em>of Data Protection Directive in Relation to Medical Research in Europe<\/em>. Ashgate Publishing Ltd., pp. 307\u2013318.<\/span><\/li>\n<\/ul>\n<h2><span style=\"color: #000000;\">Other<\/span><\/h2>\n<ul>\n<li><strong>\u0141uk\u00f3w<\/strong>, P. (2014). <a href=\"http:\/\/www.wydawnictwopzwl.pl\/promocje\/sesja-letnia-do-20\/filozofia\/prd,etyka-medyczna-z-elementami-filozofii,rid,10991.html\">Etyka bada\u0144 biomedycznych<\/a>. In: P. \u0141uk\u00f3w &amp; T. Pasierski, <em>Etyka medyczna z elementami filozofii<\/em>. Warszawa: Wydawnictwo Lekarskie PZWL, pp. 223\u2013232.<\/li>\n<li><strong>R\u00f3\u017cy\u0144ska<\/strong>, J. (2012). <a href=\"http:\/\/www.academia.edu\/2632425\/Zasady_prowadzenia_bada%C5%84_naukowych_z_udzia%C5%82em_ludzi_w_fizjoterapii_Principles_for_research_in_physiotherapy_involving_human_subjects_\">Zasady prowadzenia bada\u0144 naukowych z udzia\u0142em cz\u0142owieka w fizjoterapii<\/a>. <i>Post\u0119py Rehabilitacji<\/i>, XXVI(4), 23\u201333.<\/li>\n<li>Rekowski, W., Przy\u0142uska-Fiszer, A., <strong>R\u00f3\u017cy\u0144ska<\/strong>, J., &amp; Fija\u0142kowska, B. (2012). <a href=\"http:\/\/cejsh.icm.edu.pl\/cejsh\/element\/bwmeta1.element.desklight-72f8e22e-67d2-4d5d-bfee-5b615232eb73\">\u015arodowiskowe przyzwolenie na \u0142amanie zasad dobrej praktyki badawczej w opinii pracownik\u00f3w naukowo dydaktycznych i <\/a>doktorant\u00f3w. <i>Zagadnienia Naukoznawstwa<\/i>, 48(4), 251\u2013268.<\/li>\n<li><strong>\u0141uk\u00f3w<\/strong>, P. (2007). Etyka, prawo i charakter moralny ludzi nauki. In: B. Chyrowicz (Ed), <em>Etyka i technika. Odpowiedzialno\u015b\u0107 na miar\u0119 mo\u017cliwo\u015bci.\u00a0<\/em>Lublin: TN KUL,\u00a0ss. 55\u201374.<\/li>\n<\/ul>\n","protected":false},"excerpt":{"rendered":"<p>Innovative therapy Caplan, AL., Teagarden, JR., Kearns, L., Bateman-House, AS., Mitchell, E., Arawi, T., Upshur, R., Singh, I., R\u00f3\u017cy\u0144ska, J., Cwik, V., Gardner SL., Fair, just and compassionate: A pilot for making allocation decisions for patients requesting experimental drugs outside of clinical trials.\u00a0Journal of Medical Ethics, doi: 10.1136\/medethics-2016-103917 Borysowski, J.,\u00a0Saxena, A.,\u00a0Bateman-House, A.,\u00a0Papaluca, M.,\u00a0R\u00f3\u017cy\u0144ska J.,\u00a0Wnukiewicz-Koz\u0142owska, A.,\u2026 <span class=\"read-more\"><a href=\"https:\/\/cbb.uw.edu.pl\/en\/publications\/research-ethics\/\">Read More &raquo;<\/a><\/span><\/p>\n","protected":false},"author":1,"featured_media":0,"parent":825,"menu_order":10,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":"","_links_to":"","_links_to_target":""},"class_list":["post-901","page","type-page","status-publish","hentry"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.4 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Research ethics | Center for Bioethics and Biolaw<\/title>\n<meta name=\"description\" content=\"Centre for Bioethics and Biolaw publications on research ethics in biomedicine, in particular research on human subjects\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/cbb.uw.edu.pl\/en\/publications\/research-ethics\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta 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